My daughter in high school recently discussed Social Security in a public policy class. I’m happy to say she was able to raise her hand and contribute to the discussion. She knew that health care for older adults is tied to Social Security. We should all be familiar with Social Security and Medicare and at least the basics of how they work. I know some very smart people who don’t. They are considered “entitlements” because people are categorically eligible based on age in the case of Social Security and Medicare.
Here are 4 reasons why we need to understand Social Security and Medicare:
1. These benefits are currently in jeopardy for political reasons, specifically, Speaker Ryan would like to cut entitlements to pay for the massive corporate tax cuts.
2. If you have worked on the US, you are likely eligible for Medicare when you turn 65. It will likely be your primary payer source for health care, although Medicare does not pay for long term care. Medicare also does not pay 100% of costs. Almost ALL employers do NOT provide health care as a retirement benefit.
3. If you or a spouse or parent needs long term care and don’t have insurance for it, long term car costs roughly 100,000 a year for no and 50k a year for home care. If you can’t afford this or run out of assets, you will need to rely on Medicaid.
4. Changes to Medicare and Social Security could have devastating impact on older people in the U.S., which is all of us eventually.
Please help me to fight changes to our entitlement programs for older adults and people with disabilities. Understanding the basics is a first step.
Many years ago, my husband and I took a trip to Puerto Rico. Many people pass briefly through on the way to other Caribbean destinations. We talked with people with ties to Puerto Rico and decided to see more of the island by staying for two weeks and renting a car, staying in some of the smaller towns. Here are a few of my photos, while dated, show the beauty we found along the way.
I share this because I can validate the descriptions of the island as a special place with extreme physical beauty and proud and welcoming people. The people of Puerto Ricans have suffered due to Hurricane Maria and the lack of support from the federal government. It is a different response than was given to other US disasters.
A co-worker of mine tells me her family, including her 98 year old father, get by day to day with food and water not a sure thing, and they are not in a remote location. I don’t believe her story is unusual.
Take a look at this interesting story of Jason Maddy, who with a group of US veterans that call themselves “Grunt Rescue” took it upon themselves to go to Puerto Rico and help those in the isolated towns to get the assistance they need. You can look him up on Facebook, it seems to be legitimate. There are multiple posts from concerned family members who can’t get to family in remote areas of the island.
Here is an excerpt from an article looking at the significance of names. This has often struck me as interesting, especially when I run across an interesting name of a Senior, such as Nelda, Archie or Moses.
A name is, after all, perhaps the most important identifier of a person. Most decisions are made in about three to four seconds of meeting someone, and this “thin-slicing” is surprisingly accurate. Something as packed full of clues as a name tends to lead to all sorts of assumptions and expectations about a person, often before any face-to-face interaction has taken place. A first name can imply race, age, socioeconomic status, and sometimes religion, so it’s an easy—or lazy—way to judge someone’s background, character, and intelligence.
So I am trying to be more aware of how I make judgments based on a name. While sometimes the name fits like a glove, its useful to wait until each new acquaintance has a chance to express their unique personality.
I was confronted with a difficult realization today when talking with a co-worker. We were working with an older couple, the wife has Alzheimer’s dementia and he is her very devoted caregiver. My Coworker and I discussed the husband’s reluctance to provide needed information to access services. She pointed out to me that they were African Americans from the deep South and may be fearful of outsiders, based on past experiences with systematic racism. I then realized that so many old wounds are being opened with the recent public demonstrations of white supremacy/white nationalism. Older people are reliving the racism of the past.
Here is a great article with information we can all use. You don’t need to be a full time activist, but all of us ordinary people need to DO SOMETHING!
Everybody has a different reaction to health problems, but one response I consistently hear is, “why me?” A fair question. Life isn’t fair.
Another person recently stated over and over, “I’ve fallen apart, mentally and physically”. When he learned that his assets were depleting, he told his friend and POA, “just take me out back and shoot me.” I told him we could do a LOT better than that for him while thanking him for his service and explaining the publicly funded long term care available to him.
Another visit comes to mind when I was talking with a woman in a nursing home who just had her leg amputated. I saw her staring at my feet, exposed due to the sandals I was wearing. I was suddenly aware that I was reminding her of the leg she will never have back. Why me, she seemed to be thinking.
Then there was the individual I called to remind of some needed paperwork he had not submitted. “You have no idea what it is like to be disabled”, he stated. There is no response to that statement.
There is no place to hide when discussing matters of such importance with people. It is a part of being human myself and acknowledging the humanness in others. Again and again, I am reminded of how fortunate I am and how I must come across to people, many of whom are isolated and have little contact with people other than care providers. It is at these times that I realize the significance of this type of work, even though it is not very glamorous.
Abuelita translates to mean “dear grandmother” in Spanish. I visited the adult day program for older Hispanics recently and found several abuelitas there. I was meeting with a woman who had three younger generations there with her for the meeting, including a newborn, the baby’s mother, grandmother and great grandmother, all taking care of each other.
Around the Center, some men were playing dominoes and some of the women were helping with chores-sweeping and wiping down tables, occasionally breaking into song, singing along to the Spanish crooner playing.
Having dementia is difficult, but when compounded with a language and culture barrier, its even more so. There is a commonly held belief that Hispanic families are tight knit and don’t institutionalize their elders. This may have been true in the past, but now, family members may or may not be available to care for Abuelita 24/7. Adult Day Care is a great resource for many, but is an absolute necessity if an older family member needs 24 hour care and the Caregivers are working or in school. It also helps to give caregivers a respite break.
NADSA link Adult Day Services Locator
The long term care programs that cover the cost of adult day programs are part of the Medicaid dollars that are proposed to be drastically cut. Please consider contacting your Senator and asking that the Medicaid funding cuts are taken off the table!
One of the most wonderful parts of seeing clients in their homes and connecting older adults with long term care programs is supporting individuals and families in home settings. Along with keeping families together, it allows older adults to have their pets around, improving quality of life for all involved.
One of the most memorable pets I’ve met is Terry the cat-a very large grey cat. His owner, Marie, lives alone and has a limited support system. She told me that he comes running when she calls him Baby.
On one occasion a few years back, I brought my puppy into my workplace, which was an adult day center. One frail woman fell to her knees when she saw the puppy and held the dog with tears in her eyes. “I used to have a dog just like that and I miss her so much”, she said.
In the book, “A Man Called Ove”, there is a heartwarming subplot about his relationship with a stray cat. When Ove peacefully passes away, the cat curls up on his chest.
Pets help us to live in the present moment. It’s important to remember even when someone may be older, possibly ill or have a dementia, animals will likely provide the joy and feeling of connectedness.
I hope you enjoy this slideshow that outlines specific reasons why animals are wonderful companions for older people.